A Part of Me

As I walk through the grocery store, I act like I don’t notice their whispers. People stare as I pass them. They don’t realize the pain caused by their glances. Children stop and ask their parents, what’s wrong with “that girl”?

I was in third grade and had recently moved to a new school; I desperately wanted to fit in. Wearing a back brace that stretched from below my chin to the bottom of my hips didn’t exactly help in that department.

photo

A few months before, my mother noticed that my shoulders were uneven. She immediately made a doctor’s appointment, at which I was diagnosed with scoliosis, an s-shaped curvature of the spine that affects only three out of every 1,000 children. If left untreated, my condition could have interfered with my lung function — or worse. Surgery was an alternative to the back brace, but it would have involved inserting a metal rod into my back, decreasing my mobility and limiting my range of motion.

Soon after my diagnosis, I was sent to a professional brace maker for a three-hour fitting. Watching him create the brace made me dread wearing it more; it was obvious that it wasn’t going to be comfortable.

The brace consisted of three metal bars that extended from my neck to my waist, preventing that part of my body from moving. The bars were connected to a plastic, corset-like apparatus that was tightened with straps around my waist to straighten my lower curvature. A plastic piece was placed at my right side to straighten the upper curve.

As I received detailed instructions on how to wear the brace (18 hours a day, always worn at night, no intense physical activities, etc.), I couldn’t stop thinking about how the kids would react the next day when I wore my brace to school. As soon as I got home, I began to rummage through my closet in an attempt to find clothes that would cover up the brace. I knew that if people saw the metal device around my neck, they would never look at me the same way again. I didn’t want to face the stares. I didn’t want this change.

The next morning, I cried as I got ready for school. The previous night’s sleep had left the skin on my torso raw with irritation. My skin was not used to the brace. Neither was I.

The first day I wore the brace to school, I hoped people would overlook it. But before class, my friends bombarded me with questions. “Why are you wearing that? Does it hurt? Will you have to wear it forever?” They were curious, and who could blame them? I answered each question as best as I could, making sure to hide how much the brace bothered me.

I couldn’t wait until 12:30 when I would be able to take off the brace during lunch break. Since I couldn’t take it off by myself, my best friend, Kate, met me in the nurse’s office to undo the straps and harnesses that kept the brace tight around my torso. I was able to leave the brace in the nurse’s office for the remainder of the day, knowing that in a few hours I would have to put it on again.

During the years I wore my brace, I felt like things couldn’t get worse. I was sick of going to slumber parties in my brace. I was sick of missing out on fun activities and, most of all, I was sick of asking, “Why me?”

I used to beg my mom to let me have the surgery. If I could just have the rod in my back, I wouldn’t have to wear the brace. I didn’t care if I couldn’t move my back, at least I could be normal.

“It will be worth it in the end,” she would tell me.

There wasn’t a doubt in my mind that she was right. I knew that if I stuck it out, my back would be corrected and I could be “normal” eventually, but the four years of wearing the brace in public seemed like an eternity.

Although I never fully accepted the brace, it became a part of me. After a while, my friends stopped noticing it, and I finally began to feel more confident.

It’s been six years since my doctor told me I no longer had to wear the brace. As I listened to his words, I felt liberated. It was as if I had spent my childhood behind bars and was finally released. I never wanted to see the brace again.

“Do you want to keep it,” my doctor asked. His words were laughable and I quickly told him “no.” The brace was donated to an organization that reused its various parts.

I’ve blocked out the majority of painful memories of my years in the brace. I don’t want to think about the stares or the muffled whispers I endured as I walked through grocery stores and shopping malls. Even though these images have been lost in my memory, I will never forget the feelings they left inside.

I know what it’s like to feel different and, in one way in particular, wearing a brace has helped shape the person I am today. I feel more compassion for others who are sad or feel left out. I feel the need to be the one to help them through their pain and be a source of acceptance. If that was what came out of such a negative experience, then it was worth it in the end.

 

Related articles

The Power of Love and Support

Getting through major challenges with the love and support of friends and ...

/news/2012/apr/11/power-love/

Bed-ridden: The happy life of a sick ...

/news/2005/oct/20/jayplay_sick/

Clearly an eye opening experience

A new life without glasses

/news/2009/sep/24/clearly_eye_opening_experience/

What It's Like

An inside look into the rare experiences of KU students.

/news/2011/may/12/Feature-what-its-like-stories/

Family matters

One phone call made me realize that my role model may not ...

/news/2008/jan/17/family_matters/

Living in Remission

Months of treatment and uncertainty surrounding their disease has enabled some students ...

/news/2008/may/08/living_remission/

/comments/cr/33/691/#c241

To hell and back

A fight outside Naismith Hall began Thor Nystrom's year-long journey into the ...

/news/2008/may/05/hell_and_back/

Under the Tuscan Sun

Coping with an irreplaceable loss.

/news/2012/apr/26/tuscan-sun/

Love outlasts a lifetime

One Jayplay writer remembers her grandpa and his positive influence.

/news/2011/apr/21/Speak-personal-essay-love-outlasts-lifetime/

The Tao of Compassion

Getting what you deserve in one instance and what you don’t in ...

/news/2007/mar/15/tao_compassion/

Syringe: diabetic vs. the world

Relearning how to live with diabetes

/news/2012/jan/25/syringe-diabetic/

Love and loss

Take advantage of the time you have with loved ones before it’s ...

/news/2010/oct/07/love-and-loss/

Blog: Life and Music

Music: It's All Around You.

/news/2011/nov/30/blog-life-and-music/

A french connection

A Parisian girl quelled my reverse culture shock after living in France, ...

/news/2007/nov/01/french_connection/

Last chance

An out-of-body experience gave this writer a final goodbye

/news/2011/sep/29/last-chance/

Identity crisis: Lauren's story

Lauren is a female who takes masculine roles in lesbian relationships.

/news/2011/apr/26/identity-crisis-laurens-story/

High-heeled shoes not needed

After numerous tries, I realized that I can be sophisticated without wearing ...

/news/2007/may/10/highheeled_shoes/

Blog: Good Shoes for Soles

Why Flip-Flops Won't Work.

/news/2011/nov/30/blog-good-shoes-soles/

Here comes the sun

How a summer abroad helped free one Jayplay writer from the dark ...

/news/2011/may/12/speak-personal-essay-here-comes-sun-anxiety-london/

Matney: Putting health over appearance

Sometimes, trying to have a perfect appearance can risk good health.

/news/2012/jan/31/matney-putting-health-over-appearance/

Editor's note

Eating healthy. How much is too much?

/news/2009/oct/08/editors-note/

Woman's Best Friend

I had no idea how much company an animal could provide until ...

/news/2007/apr/19/womans_best_friend/

Kilgore: The more passionate the fan, the ...

Most of the time sports is a good way to waste some ...

/news/2011/apr/04/kilgore-more-passionate-fan-more-hurtful-letdown/

Students recovering from swine flu speak out

Three students describe their experiences with the H1N1 virus.

/news/2009/aug/31/swine_flu/

Abnormal arms, but ample ability

How one student aims to transform disability's definition.

/news/2010/apr/15/abnormal-arms-ample-ability/

Scarred for life

Dealing with an illness gives one Jayplay writer a new perspective.

/news/2011/apr/28/Speak-scarred-life-menengitis-illness/

Overworked students' dangerous race against time

Is too much work and too little time putting students' health at ...

/news/2011/apr/28/time-not-our-side/

Dying for change

An autoimmune disease is killing Jon Lane. Two months ago, Jon, a ...

/news/2008/dec/11/dying_change/

Oberthaler: I have no excuse to have ...

/news/2008/dec/08/oberthaler_flu/

Rush may join team against Ichabods

Brandon Rush could play tonight against Washburn if Kansas coach Bill Self ...

/news/2007/nov/15/Rush/

Getting back in step

Dancing may not be my life anymore, but it will always be ...

/news/2009/aug/27/getting_back_step/

Doing Without: Wearing Blue Jeans

Absence makes the heart grow...?

/news/2011/oct/06/doing-without-wearing-blue-jeans/

The alternative for healing

A look at unconventional medicinal techniques

/news/2009/feb/19/alternative_healing/

Living and laughing

KU senior refuses to let leukemia and a stem cell transplant crush ...

/news/2008/nov/20/living_and_laughing/

Hiding Daddy

I tried to block the person I needed most

/news/2007/apr/26/hiding_daddy/

Frederickson: Bon voyage to my knife

Don't try this overseas.

/news/2009/apr/10/frederickson/

Making the case for a cause

Life inside a health care access clinic with a woman who sees ...

/news/2009/feb/26/making_case_cause/

Q&A with womens' club soccer

Kansan club sports writer Emily Muskin sat down with two players from ...

/news/2007/nov/15/q_womens_club_soccer/

Coming Back Home

How one Jayplay writer lost herself in Texas and found herself back ...

/news/2012/mar/07/coming-home/

Comments

Hi, I am a 28 year old female with scoliosis and kyphosis. I wear am wearing a milwaukee back brace again for the second time in my life, this time for pain management. My e-mail is twistedspine@yahoo.com...I would like to talk with the author/person in this story or anyone else that has or is wearing a milwaukee back brace.

Twisted

Sign in to comment