Thursday, December 4, 2008
I don’t remember much about the way my grandmother was before she developed Alzheimer’s. My memories of her are tarnished by the disease and by her slow decline. I don’t remember my grandmother cooking Thanksgiving dinner, but I remember how awful I felt when she couldn’t anymore. I don’t remember her coming to watch my junior high band concerts, but I remember how disappointed I was when she couldn’t tell me what instrument she played when she was young. I remember the way I felt when she couldn’t remember my name anymore, and then the way I felt when she couldn’t remember me at all.
As the Alzheimer’s took over, she slowly began to lose everything. It started with words. She would wake up in the morning and words like “kitchen” and “stove,” which had been the foundation of her vocabulary for years, were suddenly and mysteriously absent. The kitchen had always belonged to her. It was her refuge and she was protective of it, but she began to gradually forfeit pieces of it to the disease. After “kitchen” and “stove” were gone, “cheese” and “spoon” and “coffee” were quick to follow, until just being in the kitchen frustrated and confused her.
She lost how to say “I love you” and she lost “Brianne,” and then she lost what those words even meant in the first place. She started to forget the people and the places and the stories that had brought her to that point in her life. I watched, powerless, as the foundation of a lifetime of memories crumbled and then collapsed. I watched as the Alzheimer’s slowly blurred the lines of her memory, before erasing them altogether. Seventy-five years of memories vanished, one by one, as if they had never even happened.
My grandmother slipped further and further away from reality until she barely resembled the strong, caring individual we had all grown up admiring. But there was one thing my grandmother never did lose. Up until the end, my grandmother remembered how to dance. When there was nothing left except broken sentences and confusion—when she had lost everything else—my grandmother never let go of dancing.
My grandparents spent years dancing together. Their family had always been musical, but it wasn’t until after their four children had grown up and moved away that they started attending the monthly dances at the Scott County American Legion, or traveling the 40 minutes to Garden City to two-step the night away.
Dancing was a tradition they continued right up until the end of my grandmother’s life. Alzheimer’s would cause her to throw irrational fits of anger, and only dancing could calm her down. My grandpa would calmly take her hands in his, lead her around the living room and patiently wait for her anger to subside.
One Thanksgiving, a year or two before she died, the whole family was gathered around the piano after dinner, and my uncles—never able to pass up a good jam session—pulled out their respective instruments and started up some traditional, old-time, two-steppin’ music. My grandmother stood up, a little unsure at first, but after my grandpa took her hand, everything seemed to fall into place. My uncles threw in an extra verse as grandpa and grandma took a couple turns around the living room, and for a few brief minutes, we had her back with us. There was such a simple moment of beautiful recognition in the way she hummed the melody and shuffled her feet with the music, like it was completely natural.
It seemed odd to me. Of all the things left at the end of her life, of all the loves and losses and joys and tears, what was it about dancing and music that stayed with her? At the end of a lifetime, what is it that we are all going to be left with? What will endure?
Science would explain it as a simple matter of long versus short-term memory. It might throw around words like “neurotransmitters” and “synapses,” but for my family, it’s something more than that. Dancing was the very last tie my grandmother held to her past and to us. It was something that we could all hold on to, and it was something that let us smile and remember her for the life she had led, not just for her disease.
At her funeral, my grandpa chose two songs to be played. The piano player addressed the crowd that had assembled and told us that these were two of the oddest songs she had ever been asked to play for a funeral, but at the request of my grandpa, she would play them completely up to tempo—nothing slow or sad. We all sat, smiling to ourselves as the sounds of “Rock Around the Clock” and “The Maple Leaf Rag” echoed from the baby grand and reverberated around the tiny church. It was a tribute to the thousands of miles my grandparents had traveled across the dance floor during their time together. We all sat quietly, tapping our toes to the last strains of the rag, remembering my grandmother for the one thing she could never forget.
Blog: Life and Music
Music: It's All Around You.
Alzheimer's deserves attention
KU professor reminds students that Alzheimer’s is a growing problem in the ...
Love outlasts a lifetime
One Jayplay writer remembers her grandpa and his positive influence.
A matter of TIME
I’ve come to understand the importance of my grandpa as I’ve grown ...
Love and loss
Take advantage of the time you have with loved ones before it’s ...
Sister Act
Some talents don't run in the family.
Study shows exercise can slow Alzheimer's
Researchers at the University of Kansas Medical Center are performing studies to ...
Family matters
One phone call made me realize that my role model may not ...
Under the Tuscan Sun
Coping with an irreplaceable loss.
Getting back in step
Dancing may not be my life anymore, but it will always be ...
Next to Normal
Aliza Chudnow is learning to let go of her resentment and to ...
Follow my lead
Dancing with a partner is more than just bumping and grinding
Fearless Joe Mortensen
The All Big-12 linebacker came to Kansas after breaking all of his ...
A gift from my grandmother
An eternal bond created in the kitchen
The unsettled life of Sarah Bregman
How one student's tumultuous past gave her a chance for a better ...
Meeting of the minds
I used to hate my father for becoming a pastor, but now ...
Editor's note: Feb. 4
Jayplay editor's take on this week's issue.
Learning the keys to success
How a piano lesson set the tone for my future
Editor's Note
Just a friendly note from one of our editors.
Striving for parental acceptance
Gay and lesbian students at the University of Kansas have revealed their ...
Fear, interrupted
How one man’s love helped undo the damage of another.
Running away from perfection
How running a long-distance race helped me overcome my fear of failing.
Woman's Best Friend
I had no idea how much company an animal could provide until ...
Season's greetings
Late-night, drunken caroling and a young Jewish girl who almost ruined Christmas—twice. ...
Last chance
An out-of-body experience gave this writer a final goodbye
Living in Remission
Months of treatment and uncertainty surrounding their disease has enabled some students ...
Misunderstanding my mother
After years of fighting, Jayplay writer Adam Vossen finally came to respect ...
Dance society swings to the oldies
Malicious Intimacy
Four students' experiences with domestic violence.
Shooting for something bigger
Senior Emily Powers leads this year’s golf team as Kansas tries to ...
What It's Like: To Have a Seizure ...
We know you're curious.
Best enemies
A sisterly tale wrought with rivalry
Dance of life
When Chinese student Vicky Lu found the courage to go to her ...
Latter-day stripper
Tori — as she is known on stage — has been dancing ...
A Part of Me
The brace I wore to correct scoliosis was uncomfortable and embarrassing, but ...
Hiding Daddy
I tried to block the person I needed most
When I pressed play
The story behind an accidental discovery
Puckett remembered in department ceremony
Longtime accompanist died of a heart attack Nov. 3.
Chopping away at reality
A December graduate plans on following her dream instead of her degree
In the aftermath: Kate's story
College-age women seek justice, peace and healing while coping with the pain ...
From left: Kimberlee Hinkle, Libby Johnson and Hannah ...
1 comment
Kansas Jayhawk fans hold aloft a reproduction of ...
2 comments
Erin Saupe, a Ph.D. student from St. Cloud, ...
1 comment
0 comments
Armed robbers continue to threaten.
3 comments
Comments
Use the comment form below to begin a discussion about this content.
Sign in to comment
Or login with:
OpenID